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Disability Policy Research

     
 
Policymakers struggle to adapt disability policy to medical and technological advances that allow people with significant impairments and chronic illnesses to lead more fulfilling, independent, and productive lives. The aspirations of people with disabilities keep pace with the opportunities created by these advances, but policy often lags behind, in part because of inadequate information. Yet ill-informed policy change can harm people and escalate already rapid growth in public expenditures. We provide the nation's leaders with the information they need to achieve better disability policies and programs. Read more about our disability policy research.
 
 

Highlights

 
 
Special Journal Issue Highlights Ticket to Work Evaluation
The Ticket to Work program is developing a new marketplace to increase the level and mix of employment support services for people who receive disability benefit payments from the Social Security Administration. This special issue of the Journal of Vocational Rehabilitation provides an early picture of the program's potential. Read more.
New Policy Forums to Debut September 12 in DC
photo of CapitolThe Center for Studying Disability Policy announces a new bimonthly lunchtime seminar series providing decision makers and others with an opportunity to hear about the latest disability policy research findings and discuss implications for policy. Read more.
 
 

Latest Work

 

Reports:

 
 
"The Three E’s: Enrollment, Employment, and Earnings in the Medicaid Buy-In Program, 2006." Gilbert Gimm, Sarah R. Davis, Kristin L. Andrews, Henry T. Ireys, and Su Liu, April 2008. The Medicaid Buy-In program is part of a broader federal effort to improve employment outcomes for people with disabilities by allowing states to expand Medicaid coverage to workers with disabilities whose income and assets would ordinarily make them ineligible for Medicaid.  This report presents a national profile of the enrollment, employment, and earnings of Buy-In participants in 2006 and investigates the association between participant characteristics, state program features, and employment outcomes. The report notes that the Buy-In program continues to be a popular coverage option for states and enrollment is growing nationwide from 29,398 to 97,491 participants between 2001 and 2006. About 69 percent of participants nationwide were employed with average annual earnings of $8,237 in 2006. Executive Summary

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“Evaluation of the Medicaid Value Program: Health Supports for Consumers with Chronic Conditions.” Dominick Esposito, Erin Fries Taylor, Kristin Andrews, and Marsha Gold, August 2007. The Medicaid Value Program tested interventions to improve care for adult Medicare beneficiaries with multiple chronic conditions. This report presents findings from Mathematica's evaluation; estimates of program effects, produced by the programs themselves; and case studies for the 10 interventions tested. The program succeeded in generating interest among states and health plans in developing interventions and also was successful in implementation. It was less successful in rigorous, empirical testing of the effectiveness of the interventions. Executive Summary

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"Evaluation of the Ticket to Work Program. Assessment of Post-Rollout Implementation and Early Impacts." Craig Thornton, Gina Livermore, Thomas Fraker, David Stapleton, Bonnie O'Day, David Wittenburg, Robert Weathers, Nanette Goodman, Tim Silva, Emily Sama Martin, Jesse Gregory, Debra Wright, and Arif Mamun, May 2007. The Ticket to Work (TTW) program was designed to promote employment by enhancing the market for services that help people receiving disability benefits become economically self-sufficient. To date, the Social Security Administration has successfully begun the market enhancement process by putting the core elements of the TTW program in place across the country—mailing a Ticket to more than 11 million disability beneficiaries and inviting them to use it as a way to obtain meaningful employment; implementing new rules that allow beneficiaries to attempt to work without fear of triggering a review of their disability status; and enrolling service providers, or employment networks, that offer beneficiaries new choices for providers and service mixes. Early impacts from this report to Congress suggest that TTW slightly increased beneficiary use of employment services in 2002, the first rollout year. However, the increase did not appear to produce a corresponding increase in beneficiary earnings or a reduction in benefit payments during the first two years. The authors note that impacts for 2004 and later may be larger—participation rates continue to increase, and many nonparticipants say they plan to assign their Tickets. Nevertheless, analysis of trends in TTW payment data suggests that the program would have to induce future shifts in beneficiary behavior that are much larger than what has been observed so far in order to generate the level of exits from the program envisioned by Congress. In particular, meeting the exit goal will require TTW participation to increase substantially and a larger share of participants to earn enough so that they no longer receive cash benefits. Appendices

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"Cash and Counseling: Improving the Lives of Medicaid Beneficiaries Who Need Personal Care or Home- and Community-Based Services." Randall Brown, Barbara Lepidus Carlson, Stacy Dale, Leslie Foster, Barbara Phillips, and Jennifer Schore, August 2007. To address the needs of Medicaid beneficiaries who are elderly or disabled and desire greater control over their personal care, the federal government has encouraged states to offer consumer-directed options. One of the most innovative and flexible consumer-directed-care models is Cash and Counseling, recently tested in a demonstration program in Arkansas, Florida, and New Jersey. The program gives consumers a monthly allowance that they may use to hire workers and to purchase care-related services and goods. This report summarizes findings from five years of research on how each of the three demonstration states implemented its program, and on how the programs have affected consumers who participated, consumers' paid and unpaid caregivers, and costs to Medicaid. The findings from the randomized trial study design show that the program had overwhelmingly positive effects on consumers of all ages and their caregivers. However, in each state, total Medicaid expenditures were higher under the program than what they would have been in its absence, for different reasons. States interested in offering a Cash and Counseling program or similar consumer-directed options may benefit from the report's discussion of lessons learned about how to control costs. Executive Summary

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"The Interaction of Policy and Enrollment in the Medicaid Buy-In Program, 2005." Henry T. Ireys, Sarah R. Davis, and Kristin L. Andrews, May 2007. The Medicaid Buy-In program was designed to help adults with disabilities obtain or keep their employment without fear of losing health insurance. This report presents a snapshot of the program in 2005 that captures the interplay of policy features, enrollment trends, and participant characteristics that have made the program what it is today. The analysis is based on individual-level data provided by states through "finder files," which were linked to federal administrative data to calculate enrollment figures and trends in 30 state Medicaid programs.

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Journal Articles:

 
  “Propensity Score Matching: A Note of Caution for Evaluators of Social Programs.” Deborah N. Peikes, Lorenzo Moreno, and Sean Michael Orzol, The American Statistician, August 2008. Over the past 25 years, evaluators of social programs have searched for nonexperimental methods that can substitute effectively for experimental ones. Recently, the spotlight has focused on propensity score matching for evaluating employment and education programs. The authors present a case study of their experience using this method for evaluating the State Partnership Initiative, a program to promote employment among recipients of Social Security disability benefits. Despite ideal conditions and statistical tests suggesting that the matching procedure had worked, they found that propensity score matching produced incorrect impact estimates when compared with a randomized design.


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  "Premium Increases in State Health Insurance Programs: Lessons from a Case Study of the Massachusetts Medicaid Buy-in Program." Gina A. Livermore, Nanette Goodman, Fred Hooven, and Lobat Hashemi, Inquiry, winter 2007/2008. In March 2003, Massachusetts increased the premiums it charges to most enrollees in its CommonHealth-Working (CH-W) program—the state's insurance program for working age adults with disabilities. This article reports on the impact of the premium change on disenrollment. Findings indicate that the premium change had only a small, but statistically significant impact on program exits. The CH-W experience differs from other state programs that saw substantial enrollment declines in response to new or increased premiums. This is likely due to factors that make CH-W different from other programs, the most important being administrative procedures intended to minimize disenrollment caused by nonpayment of premiums.


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  "Posttransition Experiences of Former Child SSI Recipients." Pamela J. Loprest and David C. Wittenburg, Social Service Review, December 2007. The authors use new data from the National Survey of SSI Children and Families to study the transition period for a cohort of child Supplemental Security Income (SSI) recipients after redetermination of benefits at age 18. The article examines differences between those who do not receive benefits after age 18 as adults and those who continue to do so, focusing on the connection between characteristics before age 18 and outcomes after age 18. Important differences in demographic and human capital development characteristics exist across these two groups, indicating a possible need for transition supports for some within the child SSI population. These supports are especially needed by those no longer receiving benefits after age 18 who are not engaged in any schooling, employment, or training.


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  "Material Hardship, Poverty, and Disability Among Working-Age Adults." Peiyun She and Gina A. Livermore, Social Science Quarterly, December 2007. The authors used data from the 1996 panel of SIPP to examine the extent to which working-age people with disabilities experience several types of material hardships. The findings indicate that disability is an important determinant of material hardship, even after controlling for income and other sociodemographic characteristics. In addition, a large majority of the low-income respondents who reported a material hardship also reported being limited for some period of time in the amount or kind of work they can perform. The findings provide support for policies that account for disability-related expenditures and needs when determining eligibility for means-tested assistance programs. They also suggest that the official poverty measure overstates the relative economic well-being of people with disabilities.


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  A special issue of the Journal of Vocational Rehabilitation (volume 27, number 2, 2007), titled "Ticket to Success? Early Findings from the Ticket to Work Evaluation," summarizes the early implementation experiences and impacts of the Ticket to Work (TTW) program. The program, together with other initiatives created by the Ticket to Work and Work Incentives Improvement Act, attempts to develop a new employment services marketplace to increase the level and mix of employment support services for people who receive disability benefit payments from the Social Security Administration (SSA). Rather than setting up a single training program, TTW includes payment mechanisms designed to induce employment-service providers to increase the supply of programs and the range of approaches. Six papers in the special issue, edited by Craig Thornton, Robert Weathers, and David Wittenburg, provide an early picture of both the potential for the TTW program and the challenges involved with reaching this potential. See more.

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Issue Briefs:

 
"How Do Medicaid Buy-In Participants Who Collect Social Security Disability Insurance Benefits Use SSA Work Incentive Programs?" Working with Disability, Work and Insurance In Brief #7. Kristin Andrews, Bob Weathers, and Su Liu, December 2007. Medicaid Buy-In participants who receive Social Security Disability Insurance (SSDI) benefits may not be taking full advantage of the available work incentive programs that can improve their prospects of finding employment and attaining economic self-sufficiency. This policy brief, the seventh in a series on working with disability, reveals that only 23 percent of Medicaid Buy-In participants who received SSDI benefits between 2000 and 2005 took part in a work incentive program. The brief summarizes Mathematica's study of participation rates for four SSDI work incentive programs: Trial Work Period, Extended Period of Eligibility, Impairment-Related Work Expenses, and Ticket to Work. The Trial Work Period program was the most utilized,with approximately 16 percent of beneficiaries participating. The Extended Period of Eligibility program had the second highest participation rate, 7 percent, with Ticket to Work running a close third with 6 percent. Fewer than one percent utilized the Impairment-Related Work Expenses incentive.

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"What Is the Demonstration to Maintain Independence and Employment (DMIE) and Who Is Participating?" Working with Disability Work and Insurance In Brief #6. Gilbert W. Gimm and Bob Weathers, August 2007. The sixth policy brief in a Mathematica series on working with disability looks at the Demonstration to Maintain Independence and Employment (DMIE), which allows states to provide Medicaid-equivalent or "wrap-around" coverage to supplement existing health insurance for workers with potentially disabling conditions. The brief reviews the rationale for the DMIE and describes programs and participants in four states—Hawaii, Kansas, Minnesota, and Texas.


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"Quality Care for Children with ADHD: The Role of Primary Care Physicians." Quality Care for Special Kids: Profiles of Children with Chronic Conditions and Disabilities, Update #6. Stephanie Peterson, Shanna Shulman, and Henry Ireys, April 2007. This brief, the sixth in a series on critical issues involved in caring for children with special health care needs, notes that 40 percent of children with special health care needs enrolled in commercial health insurance plans have an emotional or behavioral disorder. Of these children, 34 percent have a diagnosis of attention deficit hyperactivity disorder (ADHD) alone, and an additional 22 percent have ADHD along with another chronic condition. Children with ADHD receive most of their care from primary care clinicians and use significantly more health care services than do children without ADHD. The brief lists some newly developed health care tools that health plans can use to help ensure that treatment for these children is delivered efficiently and appropriately in primary care offices.

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Other:

 
"Keeping Track: National Disability Status and Program Performance Indicators." Nanette Goodman, Bonnie O’Day, and Allison Roche, April 2008. Measuring the status of people with disabilities and the extent to which programs are helping achieve better outcomes is an important policy concern. The number of people with disabilities in the U.S. is large and growing: 49.7 million noninstitutionalized individuals have disabilities, and about 21.5 million of them are working age. This report describes what we know about the status of these individuals. It also assesses the extent to which current data meaningfully measure their well-being. It includes a set of statistical social indicators to measure progress in important areas over time.

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"Changing Circumstances: Experiences of Child SSI Recipients Before and After Their Age-18 Redetermination for Adult Benefits." Jeffrey Hemmeter, Jacqueline Kauff, and David Wittenburg, February 2008. This paper provides an analysis of the dynamics of the transition of child Supplemental Security Income (SSI) recipients into adulthood, using linked 2001-2002 National Survey of Children and Families survey and Social Security Administration administrative data. The authors examine the interaction of impairment status, reported health needs, and other self-reported indicators of human capital on SSI program and employment outcomes after age 18. They find that after controlling for measures of disability severity, duration, and human capital, youth with other mental and behavioral disorders are much less likely to receive SSI at age 19. Their findings also suggest that non-health-related factors, particularly education, employment, and social indicators, play an important role in the probability of a child SSI recipient being on adult SSI after age 18.

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Disability Projects

 

Latest Work

Reports

Medicaid Buy-In Program

Medicaid Value Program

Ticket to Work: Report to Congress

Cash and Counseling

Medicaid Buy-In


Journal Articles

Methods Update: Propensity Score Matching

Medicaid Buy-In

Child SSI Recipients

Disability and Well-Being

Ticket to Work


Issue Briefs

Medicaid Buy-In

Demonstration to Maintain Independence and Employment

Quality Care for Special Kids


Other

Disability Status and Indicators

Child SSI Recipients